Product Description

Antiphospholipid Syndrome (or Hughes Syndrome as it is also known) is an illness that it is not well understood by doctors, let alone patients as yet. Kay Thackray's first book: 'Sticky Blood Explained' attempted to demystify the illness, as few existing books were aimed at the ordinary person with antiphospholipid syndrome. Many common symptoms were not discussed in print elsewhere and many people bought extra copies of the book for their doctor or family to increase their understanding. In this second book the author has tried to continue to explain all that she knows and understands about this disorder in a friendly and accessible way. So much changes so quickly with an illness that is only 20 years old and new discoveries are made and need to be passed on to those who live with Hughes Syndrome. It is a continual process learning about this illness, and Kay speaks to many people including Dr Graham Hughes, the man who Hughes Syndrome is named after, and fellow patients. It is all too easy to use technical terms and sound super-intelligent, the problem is that only a select few will understand! The author has found that writing in the same way that she talks to people gets the message across and simplifying facts that are hidden in complicated medical reports is appreciated by many! The book also covers the author's own life and challenges which allow her to understand and empathise with the reader, because she has been there. "I know my writing helps many to cope with this terrible illness because they tell me so and that gives me more pleasure than I can tell." Kay Thackray

Product Details

• Amazon Sales Rank: #708163 in Books
• Published on: 2005-10-23
• Original language: English
• Number of items: 1
• Binding: Paperback
• 124 pages

Customer Reviews

A must have book for an aps sufferer
This book is an inspiring read to all aps sufferers and i would highly recommend it.
It is a very good follow up to her first book and one to which anyone with this condition can easily relate to both in thought and feelings.
An excellent read well done Kay...

Great medical resource for patients
Having previously read Sticky blood from this author, I was interested to see if the changes in medical opinion and the accepted symptoms of this 'strange' disease had been covered. To my surprise they were not only covered, but surpassed with actual case references to back up the medical theories.

This book should be on the 'Must Have' list for any patient with antiphospholipid Antibody Syndrome (sticky blood or Hughes Syndrome), their families, friends and their physicians, as it gives a great insight into both the disease and the efects on both patients and families.

Regards
Eddie Bulfin

More Sticky Blood Hughes Syndrome
I enjoyed this new book by the author Kay Thackray 'More Sticky Blood'.

It gave me a valuable insight with plenty of good advice on the Syndrome (APS) that I have to live with daily.

I found great comfort from comparing notes and believe that reading 'More Sticky Blood' will do more to help me and others with Hughes Syndrome, and our families, than a whole library full of medical books which I probably would find the medical jargon difficult to understand.

I am so glad that I spent my money as I have learnt so much more and feel less afraid.

This is a 'must buy' if you have been diagnosed with Sticky Blood also known as Hughes Syndrome or Antiphospholipid Syndrome (APS). It was lovely that Dr Graham Hughes, the Consultant Rheumatologist that first described this syndrome and rewarded by his peers by naming the syndrome after him, wrote the foreword.

Well done to the author Kay Thackray for the well put explanations of the tests, getting the message heard and especially the MS v APS chapter which I found really helpful and true to me.